Long COVID Clarity Coaching
Long COVID Clarity Coaching
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    • Home
    • About
    • What We Do
    • Understanding Long COVID
    • Book Your Free Intro Call
    • FAQs
    • Price List
    • Contact Us
    • Blog
  • Home
  • About
  • What We Do
  • Understanding Long COVID
  • Book Your Free Intro Call
  • FAQs
  • Price List
  • Contact Us
  • Blog

Long COVID and Chronic Illness Navigation

Long COVID and Chronic Illness NavigationLong COVID and Chronic Illness NavigationLong COVID and Chronic Illness Navigation

Welcome to Long COVID Clarity Coaching and Navigation

What We Do

Hello! I'm really glad you're here. 

If you have Long COVID, you’re probably feeling overwhelmed trying to find appropriate care. The research is still evolving and most providers don’t fully understand how to treat conditions like Long COVID and ME/CFS. Getting an appropriate diagnosis can be challenging and once you have one, you still may be left without treatment for your symptoms.


I know firsthand how challenging and frustrating it can be to navigate these challenging conditions.


As the program manager of the one of the most comprehensive Long COVID clinics in the United States, I’ve spent years immersed in understanding Long COVID and associated chronic conditions. I’ve helped thousands of people navigate care, make sense of their symptoms and connect with the right treatments and resources. 

I understand that despite advances in research, quality Long COVID care continues to be difficult to find for most people unless you live near a major research hospital.


That’s why I created Long COVID Clarity.

 

This is a space for grounded, practical support. I offer evidence-informed care navigation to help you understand what’s happening in your body, explore treatment options and figure out which specialists or strategies might be most helpful for your unique Long COVID profile.


No miracle cures or false promises. No toxic positivity. Just clear, honest guidance from someone who deeply understands Long COVID and chronic illnesses and knows how to help.

What C.L.A.R.I.T.Y. Means to Us

Our coaching approach is rooted in the C.L.A.R.I.T.Y. model:

Connection – We start with your body and your symptoms, identifying where you need the most support
Learning – You’ll gain practical tools and insight to understand what may be driving your symptoms to pair with the most promising treatment approaches
Advocacy – We help you navigate care, prepare for appointments and communicate  your needs 

Recovery Planning – Together we’ll design a plan tailored to your energy, capacity and goals
Insight – We track what’s working, make sense of patterns and adjust accordingly
Tools – From day-to-day strategies to long-term support, we focus on what helps you move forward
You-Centered Care – Your experience and your health shape your unique recovery plan 

Support That Makes Sense

Julie Sullivan, Long COVID Clarity Coaching

Meet Julie

Hi, I’m Julie Sullivan, MS.  

I’m a healthcare leader, clinician and educator with over 25 years of experience helping individuals navigate complex medical conditions. My background is in neurological speech-language pathology, and my career has spanned hospital systems, academic teaching and program development.


Since the start of the COVID-19 pandemic, I’ve worked on the front lines of COVID care and helped build one of the largest and most comprehensive Long COVID programs in the world at Brigham and Women’s Hospital in Boston, MA. 


As program manager, I’ve worked closely with thousands of individuals experiencing post-acute sequelae of COVID-19, guiding symptom management, coordinating care and integrating emerging research into clinical pathways. My work bridges science and lived experience, with a focus on Long COVID, post-viral illness, immune dysregulation, ME/CFS and autonomic dysfunction.


I launched Long COVID Clarity Coaching to expand access to knowledgeable support.  My goal is to bring evidence-informed care navigation and practical, grounded support to people wherever they are. 


Alongside my clinical and program leadership roles, I also lead and contribute to a range of education, advocacy and outreach efforts including:

- Co-facilitate support groups for people with Long COVID and the important people in their lives

- Lead expert-led forums featuring top Long COVID researchers and clinicians

- Write and curate a weekly Long COVID newsletter that synthesizes new research, clinical trial updates and national news into clear, actionable content

- I created the Greater Boston Long COVID Awareness Week in partnership with BIDMC and Boston Medical Center

- I served as a committee member for the former AHRQ Long COVID Care Network, advising 12 new federally funded Long COVID clinics on program design, access and care navigation

- Support advocacy and equity work through the Boston COVID Recovery Cohort, helping shape policy and elevate community voices

- Speak regularly on podcasts, panels and clinician education events about Long COVID, understanding symptoms, new research and treatment models and the importance of equitable, coordinated care


Let's talk about how I can help you!

What Makes Clarity Coaching Different?

woman getting online long covid help

Virtual Care, Wherever You Are

Sessions are fully remote so you don’t need to risk travel, push through fatigue or sit in a crowded waiting room. You can get care navigation support from safely from home, on your terms. 

No Waitlists, No Referrals, No Gatekeeping

You don’t need permission to get help. I offer direct access to care navigation support and strategy without the months-long delays and scheduling hassles.

Work With a Nationally Recognized Long COVID Expert

I’ve helped lead and grow one of the country’s most trusted Long COVID programs, and I bring that same experience to my work with you. You’ll have access to expert guidance that’s informed, compassionate and always tailored to your needs. 

Up-To-Date Research, Translated Into Real-Life Care

I understand and am current on emerging treatments for long covid and chronic illness, clinical trials and expert consensus. I’ll help you understand what’s promising, what’s hype and what might actually help you. I can connect you will research and guide you through the process.

Flexible, Symptom-Informed Planning

There’s no rigid protocol here. Whether you're housebound, working full-time or somewhere in between, we’ll work together to create a plan that honors your capacity.

Integrated Knowledge of Overlapping Conditions

I bring deep experience with the kinds of multisystem conditions that often show up together, like dysautonomia, post-exertional symptoms and autoimmune flares. We’ll work to understand what’s happening in your body and how to best manage your symptoms. 

Whole-Person Support

I take time to understand your background, your circumstances and what matters to you. My work is guided by respect, clear communication and a commitment to making care feel accessible and personalized. 

Clear, Transparent Pricing

I believe in clear, upfront pricing and respectful, collaborative care. You’ll never be pressured into extra sessions, and I don’t promote or sell treatment products of any kind. My goal is to offer meaningful support that fits your needs and respects your time, energy and budget. If you are experiencing financial hardship, I reserve a limited number of sliding scale sessions.

Take Control of Your Health

Medical Navigation

Resources & Referrals

Resources & Referrals

 I help you understand your symptoms, manage daily challenges and identify which specialists may be helpful based on your history and needs. We’ll also talk through how to prepare for appointments and advocate for appropriate care. 

Resources & Referrals

Resources & Referrals

Resources & Referrals

I provide educational materials, care guides and symptom management tools for long covid and chronic illness that are evidence-informed and practical. I can recommend which specialist referrals, clinical trials, trusted providers and programs can expand your care system. 

Research and Insights

Resources & Referrals

Research and Insights

I stay up to date on the latest research in Long COVID, ME/CFS and related conditions. I break down new findings in plain language, explain how they may apply to you and help you stay informed without feeling overwhelmed. 

Community & Support

Community & Support

Research and Insights

 I connect individuals living with complex illness to peer groups, services and communities where they don’t have to explain everything. Together, we build a system that reduces isolation and helps you feel more seen and supported. 

Disability Advocacy

Community & Support

Disability Advocacy

 I help you navigate systems like workplace accommodations, school supports and Social Security Disability. I offer practical guidance, documentation strategies and tools rooted in trauma-informed, equitable care that respects your lived experience. 

Caregiver Support

Community & Support

Disability Advocacy

 If you're caring for someone with Long COVID or chronic illness, I offer tools, clarity and resources to help you navigate that role in a sustainable way. We’ll talk through what to expect, how to set boundaries and how to access support for yourself too. 

Personalized Materials

Personalized Materials

Personalized Materials

Every client receives tailored resources after sessions, including symptom guides, care planning tools and relevant research. I maintain a curated Dropbox of evidence-informed materials, handouts and worksheets that are practical and easy to use and customized to fit your needs.

Foster Connections

Personalized Materials

Personalized Materials

Living with Long COVID can be isolating, especially when no one around you really gets it. I help connect you with trusted peer groups, online communities and others walking a similar path. Whether you're seeking solidarity, encouragement or a place to feel understood, you're not in this alone.

Is This The Right Fit For You?

You’re in the right place if:

  • You’re newly diagnosed or trying to make sense of what’s happening in your body
  • You don’t have access to a coordinated Long COVID care team or you lack providers who understand how to assess and treat your symptoms
  • Your Long COVID care feels splintered, providers don't communicate with each other and you need help pulling all the pieces together
  • You're overwhelmed by all of the Long COVID information online and unsure which research studies and treatments to pursue
  • You’re looking for help understanding your symptoms, knowing which providers to see and preparing for appointments
  • You’re feeling stuck in your recovery and need direction.


Whether it’s figuring out what kind of specialist to see, how to advocate for referrals, or how to better manage your day-to-day, I’ll work with you to identify priorities and build a plan that feels manageable.


Schedule Your Free Call Today!

Get Started

Is This The Right Fit For You?

This may NOT be the right fit if:

  • You’re seeking medical prescriptions or refills
  • You already have a specialized care Long COVID team and clear direction
  • Your needs align more with crisis support or urgent care
  • You’re currently receiving Long COVID care at Mass General Brigham. Due to my clinical role in the COVID Recovery Center, I do not provide additional care for established patients on this platform.

Understanding Long COVID

What is Long COVID?

Long COVID (also called Post-Acute Sequelae of COVID or PASC) refers to symptoms that persist or appear after a COVID-19 infection. These symptoms can affect people of all ages, including those who had mild or asymptomatic COVID infections.

Long COVID is a multi-system condition, meaning it can impact the brain, heart, lungs, digestive system, nervous system muscles and more. For some, their symptoms are constant. For others, symptoms come and go or flare in severity after activity, stress or exposure to other illnesses. 

Who Develops Long COVID?

Long COVID can affect people of any age or health background. Most cases occur in adults, however, babies, children and teens also develop Long COVID. While estimates vary, research suggests that between 10% and 20% of individuals who contract COVID-19 may go on to experience lingering or new symptoms post-infection. The risk is lower in those who are vaccinated, but Long COVID continues to occur after breakthrough cases and with repeat infections. Some people are more likely to develop Long COVID than others. While these are not causes of Long COVID, the following factors may increase one’s vulnerability:

  • People assigned female at birth, due to genetic and hormonal differences that impact immune function
  • Adults between the ages of 30 and 60
  • People with underlying autoimmune or allergic conditions
  • Those who had more than five illness symptoms in the first week of their COVID infection
  • People who had difficulty recovering from other viral illnesses in the past
  • People who were not able to fully rest or pace during early recovery from their COVID infection

What Might Be Causing Long COVID?

Researchers believe that Long COVID symptoms are driven by several overlapping factors that may show up differently in each person depending on things like genetics, hormonal influences and immune function. These factors are still being studied but may help explain why symptoms vary so widely and affect different combinations of body systems.

  • Ongoing immune system activation or dysfunction
  • Viral persistence (fragments of virus lingering in tissues)
  • Blood vessel damage and microclots
  • Autonomic nervous system disruption (dysautonomia)
  • Gut microbiome imbalance (gut dysbiosis)
  • Hormonal changes and neuroinflammation

Common Long COVID Symptoms

People with Long COVID can experience a wide range of symptoms that vary in type and severity. Some symptoms come and go, while others may persist for months. They can affect multiple systems in the body and often interfere with daily life.

  • Fatigue (often severe or relapsing)
  • Post-exertional malaise (symptoms worsening after activity)
  • “Brain fog” and cognitive difficulties
  • Shortness of breath
  • Chest pain or tightness
  • Heart palpitations
  • Dizziness or lightheadedness (especially when standing)
  • Headaches
  • Muscle aches or joint pain
  • Sleep disturbances (insomnia, unrefreshing sleep)
  • Anxiety and/or depression
  • Loss or change in smell or taste
  • Digestive issues (nausea, bloating, diarrhea, food sensitivities)
  • Tingling, numbness or burning sensations
  • Temperature dysregulation or cold intolerance
  • Menstrual changes or hormonal symptoms
  • Visual disturbances or sensitivity to light
  • Tinnitus or ear pressure

Why is it so difficult to find the right care for Long COVID?

SARS-CoV-2 is a new virus that behaves differently from those that came before it. Researchers are still working to understand how it affects the body and how to treat the long-term damage it can cause. Long COVID is a complex immune-mediated condition that is not fully understood. It can affect nearly every body system and doesn’t fit neatly into one medical specialty.


People with post-infection chronic illnesses are often passed from one provider to another, told their test results are normal, or left to manage dozens of symptoms on their own. Even after receiving a diagnosis, many are given little direction on what to do next. Most providers have not been trained to recognize Long COVID and may not be familiar with the latest research.


At the same time, funding for many critical Long COVID initiatives has dried up, making it even harder to access high-quality care and accurate information. 

Services

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Free 15-Minute Consult

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1:1 Coaching & Care Navigation

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Personalized Roadmaps

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Education & Speaking

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Program Consulting & Training

Long COVID help
Not Sure Where to Start?

Book Your Free 15-Minute Consult Today!

Let’s find the right fit for you. I offer a range of coaching and care navigation options to meet different needs, budgets and stages of illness. Whether you’re looking for a one-time consult or ongoing support, all sessions are designed to be practical, flexible and rooted in real-world experience.

Learn More

1:1 Clarity Sessions & Care Navigation

Whether you’re newly diagnosed or deep in the maze of chronic illness, one-on-one coaching offers support tailored to your life.


In a Clarity Session, we will:

  • Make sense of your symptoms and current challenges
  • Identify immediate priorities and actionable next steps
  • Review your current care plan and troubleshoot specific concerns
  • Prepare for upcoming appointments with confidence and clarity
     

Sessions are available in 60-minute and 30-minute formats. Most people begin with a 60-minute Clarity Session or the Personalized Roadmap to dive deeper into their history, clarify priorities and create a personalized strategy. From there, you can choose a package for continued guidance, treatment planning and coordination support. Short 30-minute touch base sessions are available for quick check-ins or focused questions.

Personalized Roadmaps

Feeling stuck, scattered or unsure how to move forward?
A Personalized Roadmap gives you a clear, step-by-step plan tailored to your experience with Long COVID, ME/CFS or other complex chronic conditions.


In this multi-session package, we will:

  • Take a deep dive into your health history, symptoms and current challenges
  • Identify your goals and uncover what’s getting in the way
  • Create a structured plan that feels manageable and grounded in practical, evidence-informed strategies
     

Whether you want to explore treatment options, prepare for medical appointments or simply gain a better understanding of your body, you’ll leave with a written plan and curated resources you can rely on, a roadmap you can return to whenever you need clarity and direction.

Education and Speaking Engagements

I’ve spent years translating complex science and clinical insights into accessible, real-world guidance for those living with chronic illness—and for the professionals who care for them. I offer talks, workshops, panels and educational sessions tailored for conferences, health systems, support groups, nonprofits and more.


Topics include:

  • Long COVID, ME/CFS and post-viral illness
  • Building trauma-informed, patient-centered care
  • Supporting caregivers
  • Navigating disability and systems of care
  • The role of community, validation and lived experience in recovery


I bring clinical expertise, a strong grounding in current research and a deep respect for those navigating these conditions every day. Whether your audience is clinical, professional or community-based, I adapt the message to meet them where they are.

Program Consulting and Training

If you're building or growing a Long COVID or chronic illness program, I can help. I offer consulting for hospitals, research groups, nonprofits and care teams who want to better serve people with complex chronic illness.


Areas of expertise include:

  • Designing multidisciplinary clinical programs
  • Creating support groups and community offerings
  • Coaching providers on patient-centered, trauma-informed care
  • Recruiting and onboarding staff with lived experience
  • Integrating research and real-world care


I built one of the most comprehensive Long COVID programs in the country and currently serve on national advisory panels helping other teams do the same. I know what works—and what burns people out. Let’s build something sustainable.

Frequently Asked Questions

Please reach out to us at longcovidclarity@gmail.com with any additional questions!

I am not a medical provider and as such, I do not test, diagnose or prescribe treatments. I encourage you to review our list of Long COVID symptoms and if they align with what you're experiencing, discuss with your primary care provider first.


I help people with Long COVID, ME/CFS and other complex chronic conditions make sense of their symptoms, find resources that may help and move forward with more clarity. I can advise on which specialists and testing may be helpful and connect you with research opportunities.


Coaching sessions are 30 or 60 minutes and focus on what you need most right now—whether that’s navigating a symptom flare, figuring out next steps or just being heard.
The Personalized Roadmap includes a 75-minute intake session, a detailed written plan, a 45-minute follow-up and two weeks of email support. It’s ideal for people who want a big-picture strategy and tools they can act on. 


Yes. I support caregivers directly or as part of a joint session. I help you understand what your loved one is going through, find appropriate care and protect your own well-being in the process. 


No. All services are private pay.  I reserve a small number of sliding scale spots each month for Clarity Sessions or a Personalized Roadmap. These are available by request if cost is a barrier. 


Absolutely. I would be happy to help you wherever you live.  Long COVID doesn’t stop at borders and support shouldn't either. Please note that all sessions are scheduled in U.S. Eastern Time and pricing is listed in U.S. dollars. 


I understand that it's not always easy to predict the ups and downs of chronic illness. You can cancel or reschedule up to 24 hours in advance. Late cancellations or no-shows may be charged in full, though I’ll always try to be flexible if something urgent comes up. 


Absolutely. I don’t share your information or keep medical records. Your privacy matters, and I aim to create a space where you can speak freely and safely. 


Long COVID Clarity Coaching and Navigation: Schedule Your Free 15-Minute Consult!

Book Now

Menu / Price List

Clarity Session – $175

A focused 60-minute session to review and refine your current plan.

Who It's For:

  • You have a care plan but want expert feedback or a second opinion
  • You have 1–2 specific issues or questions to troubleshoot
  • You want actionable next steps without committing to a full package

What's Included:

  • Pre-session intake form to prioritize your concerns
  • 60-minute 1:1 coaching session
  • Targeted advice with 2–3 clear action steps
  • Follow-up email with resources and recommendations


Personalized Roadmap – $525

A personalized roadmap for clarity, direction and next steps.

Who It's For:

  • You’re starting from scratch or feel stuck and overwhelmed
  • You need a structured plan with tailored advice and strategies
  • You want a written guide and curated resources to support your care

What's Included:

  •  75-minute intake session: A deep dive into your history, symptoms, and goals
  • 45-minute follow-up session: Fine-tune your plan and address new questions
  • Personalized written roadmap: A summary of key takeaways, recommended next steps, and curated resources (articles, tools, referrals, or clinical information)
  • 2 weeks of light email support after your follow-up


Care Partner Package – $1,100

A 3-month coaching partnership with ongoing support and resources

Who It's For:

  • You want someone walking with you through the ups and downs
  • You need consistent guidance, adjustments, and encouragement
  • You want a full plan plus ongoing check-ins and resources

What’s Included:

  • Everything in the Personalized Roadmap
  • 4 additional 60-minute sessions (6 total sessions)
  • Ongoing email support (responses within 48 hours)
  • Resource updates and plan adjustments as your needs change
  • Savings of $125 compared to purchasing individually


À La Carte Sessions

(Available after Personalized Roadmap or Clarity Session)

60-Minute Sessions

  • Single – $175
  • 3-Session Package – $500 (save $25)
  • 6-Session Package – $1,000 (save $50)

30-Minute Sessions

  • Single – $90
  • 3-Session Package – $250 (save $20)
  • 6-Session Package – $500 (save $40)


Speaking Engagements & Workshops

Educational talks, webinars or group sessions on Long COVID, ME/CFS, post-viral illness, and care navigation for complex chronic conditions.
Quote available upon request
Custom content available for medical providers, advocacy groups, research teams, patients, and the public. 


Program Consulting & Clinical Training

Support for hospitals, clinics and organizations developing Long COVID or complex chronic illness programs. Includes care model design, workflow planning, clinical education and staff training.

Quote available upon request
Let’s build something sustainable, patient-centered and evidence-informed. 

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